Articles and Information
Over the course of our time with DES, we have come across a wide variety of articles and resources that talk about DES and its negative effects. We are sharing some below, but would always welcome new submissions!
New Partner - Therapist David Tsveer (http://dtcounseling.com/) has offered to help our group members with any mental health issues from which they might be suffering. Because of licensing issues, he may not be able to help every single person, but at the very least can provide references and contact information for people available in your state. If you are suffering from any issues related to DES or otherwise, please feel free to reach out to him via his website. His background will also be included on our website for the future as he has agreed to be a part of our expanding coalition.
DES Statistics - Originally created by a separate group, https://deswtf.org, the below image highlights some but not ALL of the DES injuries known to impact those affected, Do any of these conditions seem familiar to you, either through your own experiences or the experiences of your loved ones?
National DES Awareness Week: National DES Awareness Week
-- First signed in 1985 by President Ronald Reagan, 21-27 April was designated as National DES Awareness Week. Please see the link above for our hosting of the original text of the proclamation.Federal Task Force Endorses Screening for Lung Cancer for Smokers: https://www.washingtonpost.com/health/2021/03/09/lung-cancer-screening/
-- This is an example of the type of screening we are seeking for those harmed by DES. While we did not choose to be harmed by the effects of DES, we believe that all of us should have the opportunity to have these kinds of screenings and assistance.Rarediseases.org - Diethylstilbestrol Syndrome: https://rarediseases.org/gard-rare-disease/1859/diethylstilbestrol-syndrome/
-- The National Institutes of Health has termed medical diagnoses related to DES exposure in utero as Diethylstilbestrol Syndrome. Please note not every medical situation related to DES exposure is listed.National Institute of Health - DES Syndrome: https://rarediseases.info.nih.gov/diseases/1859/diethylstilbestrol-syndrome
-- This link has very similar information to the one posted above.NIH National Library of Medicine - DES Link to Breast Cancer: https://pubmed.ncbi.nlm.nih.gov/12420954/
-- Known as the Palmer study, which documents higher risks for breast cancer for DES daughters.New Jersey Department of Health Hazardous Substance Fact Sheet - Diethylstilbestrol: https://nj.gov/health/eoh/rtkweb/documents/fs/0709.pdf
-- This fact sheet, published by the New Jersey Department of Health in 2002 (updated in 2010) outlines the key dangers of being exposed to DES.Regulation of Diethylstilbestrol (1975), Senate Hearing: https://books.google.com/books?id=i8SjxHJ0T7cC&lpg=PA215&ots=okkRvlmq5X&dq=senator%20kennedy%20hearing%20on%20diethylstilbestrol%201975&pg=PP1#v=onepage&q&f=false
-- This was a hearing on regulation of DES in animal feed, but testimony was given by DES mothers and daughters about the harm it personally caused them. Please note that this is a 235 page book, but there is a lot of good information contained throughout.